Charley's Fund

Of course I do the turkey thing in November like everyone else. But today I’m feeling like I need more days of giving thanks than just that one Thursday in November. As I scroll through the names of donors who contributed to our 2012/2013 annual appeal, I am overwhelmed by the show of support. To [...]

Three days from now… this coming Sunday… 11/11… Charley Turns 12 and he’s still lovin’ life! Last year we made a huge deal about Charley’s 11th birthday.  We appeared on national TV to talk about our little boy who, miraculously, turned 11 on 11/11/11.  You sprung to action.  And together we raised $74,000 in honor of that significant, mystical day.  [...]

I know July 4 was over a week ago, but for me today is Independence Day.  Charley has spent the past three days down in New Jersey on his own, without a parent.  Don’t worry — he’s not partying in a share house or roaming the casinos in Atlantic City, which is probably what you’re imagining if you [...]

Finally — the moment Charley has been waiting for these past three years — he reached 48″ tall!  This is a huge milestone for Charley because for the first time ever he is tall enough to ride the rollercoasters at amusement parks.  Charley has been very slow to grow because he has been taking steroids [...]

Clearly I haven’t mastered the art of blogging. This week it occurred to me that I hadn’t posted an entry in a while, maybe even a couple of months. So I logged in to update my readers. To my shock and horror, the most recent entry is dated January 2011! So it has been a [...]

I’m the worst when it comes to following through on resolutions. Every year on Jan 1st I decide to get in shape, organize my files, and be a better friend. By the 15th it’s clear I’m not getting any of that done. So this summer, when I determined that this would be The Year of [...]

Charley is 9 and three quarters years old. When I was a kid looking forward to turning 10, all I could think about was “double digits” and how cool and mature it seemed to have two digits in my age. I felt the same way last year, when my older son Sam turned 10. To [...]

Sometimes for a few blissful minutes, I forget that Charley has DMD. To you that might seem impossible, since we’re constantly faced with daily reminders of Charley’s disease. Every evening we follow a rigorous routine of supplements and stretching. Since long walks are challenging, we often have to break out our handicap parking placard. And [...]

I am elated to finally be installed in our new house for so many reasons. First of all, I can now get back to my main job, which is raising money for Charley’s Fund. With almost all of the house-related decisions behind us, a good part of my day is freed up to focus on [...]