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Let’s Make Duchenne History

Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.

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In honor of Charley’s 18th birthday, we present…

18 reasons to keep up fight
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featuring Charley’s 18 cousins!


to our 2018 Annual Appeal

Charley’s Coffee Club

Fueling research for a cure. One cup at a time.

Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.


We are Charley’s Fund

DEPLOYED to advance new therapies

Read up on our research strategy – Click on the button below

RAISED through The Race to Yes

Learn how we’re shining a light on the regulatory process

MOVING with our support

See what treatments are currently moving forward



Your donations + our creative thinking =
historic progress


Learn how we target and tackle challenges



To support innovation



Charley, a 17-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.



Updates & Inspiration

Homepage NewsResearch News
November 30, 2018

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
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Homepage NewsResearch News
September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
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Homepage NewsNews
August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
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Homepage NewsTracy's Blog
July 31, 2017

“Let’s just say that my life is a combination of bitter and sweet.”

“Let's just say that my life is a combination of bitter and sweet.” I try not to make a habit of plagiarizing my kids, but…
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