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Let’s Make Duchenne History

Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.

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THANK YOU for another great Race Against Time! It's not too late to donate -- help us cross the finish line to our record-breaking goal of $175,000.

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Charley’s Coffee Club

Fueling research for a cure. One cup at a time.

Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.

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Eteplirsen Approved

9.19.16

Majorly HUGE historic moment!!! The FDA finally approved Eteplirsen. We’ve supported this therapeutic approach since 2005, and for the past three years we’ve been fighting for its approval. You helped make this happen. We need more medicines to help more kids, but for today be proud. Be happy. Be invigorated. We are making a difference.

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We are Charley’s Fund

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DEPLOYED to advance new therapies

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RAISED through The Race to Yes

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MOVING with our support

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Your donations + our creative thinking =
historic progress

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Charley

Charley, a soon-to-be 17-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.

Him

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Updates & Inspiration

Homepage NewsTracy's Blog
October 27, 2017

The Woman Behind the Woman

This blog post is not about Charley. It’s not about a boy with Duchenne. It’s not even about a boy. It’s about a woman. But…
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Homepage NewsResearch News
September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
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Homepage NewsNews
August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
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Homepage NewsTracy's Blog
July 31, 2017

“Let’s just say that my life is a combination of bitter and sweet.”

“Let's just say that my life is a combination of bitter and sweet.” I try not to make a habit of plagiarizing my kids, but…
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Homepage NewsResearch News
July 22, 2017

What’s next for exon skipping, the personalized medicine that produces dystrophin?

The first exon-skipping treatment for DMD was approved last year, but this is no time to rest on our laurels. We're funding the development of…
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Stem cells isolated from mouse muscle fibers are grown into myotubes in a culture dish. These structures have muscle fiber-like properties useful for testing drugs like NEIs.
Homepage NewsResearch News
April 28, 2017

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley's Fund, Duchenne UK, and Joining Jack recently announced a collaborative grant to Dr. Dada Pisconti of the University of Liverpool in England. With this…
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