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Let’s Make Duchenne History

Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.

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Charley’s Coffee Club

Fueling research for a cure. One cup at a time.

Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.

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Eteplirsen Approved

9.19.16

Majorly HUGE historic moment!!! The FDA finally approved Eteplirsen. We’ve supported this therapeutic approach since 2005, and for the past three years we’ve been fighting for its approval. You helped make this happen. We need more medicines to help more kids, but for today be proud. Be happy. Be invigorated. We are making a difference.

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We are Charley’s Fund

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DEPLOYED to advance new therapies

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RAISED through The Race to Yes

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Your donations + our creative thinking =
historic progress

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Charley

Charley, a soon-to-be 16 year old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.

Him

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Updates & Inspiration

Stem cells isolated from mouse muscle fibers are grown into myotubes in a culture dish. These structures have muscle fiber-like properties useful for testing drugs like NEIs.
Homepage NewsResearch News
April 28, 2017

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley's Fund, Duchenne UK, and Joining Jack recently announced a collaborative grant to Dr. Dada Pisconti of the University of Liverpool in England. With this…
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EIM in Action
Homepage NewsResearch News
March 10, 2017

Promising new data about Electrical Impedance Myography for DMD

Harvard doctor and scientist Seward Rutkove recently published new data about Electrical Impedance Myography, a non-invasive outcome measure for Duchenne muscular dystrophy and other muscle diseases. Charley's…
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Homepage NewsNewsResearch News
September 19, 2016

FDA grants accelerated approval to first drug for Duchenne muscular dystrophy

The U.S. Food and Drug Administration today approved Exondys 51 (eteplirsen) injection, the first drug approved to treat patients with Duchenne muscular dystrophy (DMD). Exondys…
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