Majorly HUGE historic moment!!! The FDA finally approved Eteplirsen. We’ve supported this therapeutic approach since 2005, and for the past three years we’ve been fighting for its approval. You helped make this happen. We need more medicines to help more kids, but for today be proud. Be happy. Be invigorated. We are making a difference.
We are Charley’s Fund
Charley, a soon-to-be 17-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.