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Let’s Make Duchenne History

Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.

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In honor of Charley’s 18th birthday, we present…

18 reasons to keep up fight
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featuring Charley’s 18 cousins!

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to support our work

Charley’s Coffee Club

Fueling research for a cure. One cup at a time.

Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.

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We are Charley’s Fund

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DEPLOYED to advance new therapies

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100,000
RAISED through The Race to Yes

Learn how we’re shining a light on the regulatory process

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MOVING with our support

See what treatments are currently moving forward

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Your donations + our creative thinking =
historic progress

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Learn how we target and tackle challenges

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To support innovation

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Charley

Charley, a 17-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.

Him

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Updates & Inspiration

Fundraising IdeasHomepage News
February 16, 2019

How do you speed research in style? Host a sip and shop to stop Duchenne!

One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…
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Homepage NewsResearch News
November 30, 2018

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
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Get exclusive updates on DMD – and what we’re doing to stop it – straight to your inbox by CHARLeNews