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Charley's Fund Admin

Homepage NewsNews
August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
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Hall of Fame
October 30, 2016

Lexi Weintraub

Go-getter Lexi Weintraub of Irvington, NY gets a gold medal for organizing and executing a fundraiser in record time! When Lexi learned about Charley’s Fund in May,…
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Past Events
October 2, 2016

Join us October 16th in New York for the 2016 Race Against Time!


The Race Against Time is back for the seventh year in a row, and 2016 promises to be a milestone year, both for the Race…
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Homepage NewsNewsResearch News
September 19, 2016

FDA grants accelerated approval to first drug for Duchenne muscular dystrophy

The U.S. Food and Drug Administration today approved Exondys 51 (eteplirsen) injection, the first drug approved to treat patients with Duchenne muscular dystrophy (DMD). Exondys…
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