February 11, 2007
Birthday Presents
For my birthday today, I had the greatest gift. I spent the afternoon skiing with Charley. It’s hard to say this without hearing schmaltzy violins…
August 18, 2006
Goodbye Summer
This afternoon I pick up Charley and his brother Sammy at camp for the last day this summer. I hate this day because it is…
July 5, 2006
Back to Back Fundraisers
We recently completed back-to-back fundraising events in New York City. Our first annual children’s concert, starring David Grover and the Big Bear Band, was held…
June 6, 2006
Research Update
When we incorporated Charley’s Fund in November 2004, I had no idea that we could have an impact on the medical research in such a…
January 24, 2006
Big Money from a Small Person
Big Money from a Small Person Several months ago, I received my nephew's bar-mitzvah invitation in the mail. Among the usual enclosures, such as a…
December 1, 2005
Where in the World Is Charley Seckler?
Forgive the corniness, but that is the only apt title for this sorely belated blog entry. Over the past six weeks, we have traveled across…
September 23, 2005
Attention Teenagers
Two young people we know recently came up with terrific ways to help Charley's Fund. Not only are these kids raising money and awareness, but…
September 22, 2005
Gems for Duchenne
Shortly after Charley was diagnosed with DMD, we realized that scientific research was our only hope for a better prognosis. Currently, there is no effective…
September 4, 2005
Letters from Supporters
I must admit, the subject of this blog arises from dual motives, one completely legitimate and the other not so pure. Instead of crafting my…