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Charley's Fund Admin

Tracy's Blog
January 26, 2016

My Heart Aches

Although the fight against Duchenne is draining and difficult and often discouraging, I usually like to blog about the grit and determination we need to…
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Tracy's Blog
December 24, 2015

Exon skipping up for Approval

Kyndrisa, the drug being reviewed today by an FDA advisory committee, is the first Duchenne treatment ever to go up for approval in the US.…
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Tracy's Blog
December 22, 2015

The Year of the Dragon: video blog

Today I share my first-ever "vlog", aka video blog. Don't worry, I had never heard the term either until someone much younger than me suggested…
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Tracy's Blog
November 23, 2015

Big Day Tomorrow

Tomorrow is a big day. A special advisory committee convened by the FDA will spend all day reviewing the first Duchenne treatment up for approval…
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Hall of Fame
November 21, 2015

Sabrina Wohl and Jordy Erenfryd

What’s a sure-fire way to raise a ton of money? Sell food to hungry people! During the fall of 2015, Sabrina Wohl and Jordy Erenfryd…
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Hall of Fame
October 31, 2015

Berkshire Country Day School 9th Graders 2015

When 14-year-old Charlie O’Neil received Christmas money from his grandpa, instead of rushing out to spend it or stashing it in the bank, he donated…
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Hall of Fame
October 31, 2015

Lucas Seckler

For three years running, Rumson-Fair Haven High School has hosted a volleyball tournament to raise money for Charley’s Fund. The winning team gets a chance…
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