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Fundraising IdeasHomepage News
February 16, 2019

How do you speed research in style? Host a sip and shop to stop Duchenne!

One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…
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Homepage NewsResearch News
November 30, 2018

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
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Homepage NewsResearch News
September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
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Homepage NewsNews
August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
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Homepage NewsTracy's Blog
July 31, 2017

“Let’s just say that my life is a combination of bitter and sweet.”

“Let's just say that my life is a combination of bitter and sweet.” I try not to make a habit of plagiarizing my kids, but…
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