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Tracy’s Blog

Tracy's Blog
November 23, 2015

Big Day Tomorrow

Tomorrow is a big day. A special advisory committee convened by the FDA will spend all day reviewing the first Duchenne treatment up for approval…
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Tracy's Blog
August 21, 2015

Seismic Shift Underfoot

A couple of weeks ago, I spoke to a woman from Miami whose 6-year-old son was recently diagnosed with Duchenne. We talked for a while,…
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Tracy's Blog
August 21, 2015

Chicken or Egg No Matter

Charley’s going to high school next year. The very thought of it has been enough to nauseate me. TheHealthSite.com lists the #1 cause of frequent…
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Tracy's Blog
August 15, 2015

Seismic Shift Underfoot

Charley hanging out at a friend's pool (Thank you Silvermans for always having us over to swim -- love you guys!) A couple of weeks…
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Tracy's Blog
June 22, 2015

June newsletter

  CHARLeNews June 2015 In this Issue: In the Clinic — BREAKING NEWS: HT-100 Increases Strength Upcoming Event — Cycle the Berkshires  Event Debrief — Snoop Dogg on Stage with…
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Tracy's Blog
April 27, 2015

Chicken or Egg No Matter

Charley’s going to high school next year. The very thought of it has been enough to nauseate me. TheHealthSite.com lists the #1 cause of frequent…
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Tracy's Blog
April 27, 2015

A Week Away

I’m posting this as we fly home from Samana Peninsula, Dominican Republic. This was our family’s first “pure” vacation. We didn’t go because the location is on…
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Tracy's Blog
December 26, 2014

From Hospital to Beach and Back

Double down, go for broke, swing for the fences... we're doing it for Charley who does it every day! Case in point: the double loin…
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Tracy's Blog
December 23, 2014

Fatten our Monthly Check in One Simple Step!

When it comes to computers, I hate to learn new tricks. When Facebook came on the scene several years ago, I had zero patience to…
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