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Charley’s Fund in the News

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September 19, 2016

FDA grants accelerated approval to first drug for Duchenne muscular dystrophy

The U.S. Food and Drug Administration today approved Exondys 51 (eteplirsen) injection, the first drug approved to treat patients with Duchenne muscular dystrophy (DMD). Exondys…
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November 16, 2012

Darius on Nightline!

Photo credit: Darius Weems on Facebook This just in --ABC's Nightline devotes its entire Thanksgiving special to Darius Weems!!! Follow Darius to Maine, where he…
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May 8, 2012

Patient Associations Fostering Halo’s Effect in DMD Space – BioWorld Today

By Jennifer Boggs Managing Editor For companies working in orphan diseases, support from patient advocacy groups and foundations is critical, both in terms of providing…
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October 26, 2011

Galapagos initiates clinical studies with GLPG0492, a candidate drug for cachexia

Galapagos initiates clinical studies with GLPG0492, a candidate drug for cachexia Mechelen, Belgium; 20 May 2010 – Galapagos NV (Euronext: GLPG) announced today that it…
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January 9, 2008

LOCAL MOM CHOSEN AS NATIONAL AWARD FINALIST BY COOKIE MAGAZINE

FOR IMMEDIATE RELEASE: CONTACT: January 9, 2008 Dr. Benjy Seckler Voice: (877) 436-3363 or (413) 528-5744 Email: [email protected] LOCAL MOM CHOSEN AS NATIONAL AWARD FINALIST…
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December 27, 2007

Leiden University Medical Center and Prosensa B.V. Announce New England Journal of Medicine Publication of First Successful Clinical Study with RNA-based Therapeutic PRO051 in Duchenne Muscular Dystrophy

Novel RNA-based therapeutic PRO051 to enter Phase I/II clinical trials in DMD Leiden, the Netherlands, December 27, 2007. Leiden University Medical Center (LUMC) and Biotech…
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December 4, 2007

Darius Goes West Premiere

Benjy and I just returned from the Santa Barbara International Film Festival, where we attended the world premiere of the documentary film Darius Goes West.…
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November 8, 2007

CombinatoRx and Charley’s Fund/Nash Avery Foundation Collaborate to Develop Novel Agents for Duchenne Muscular Dystrophy

CombinatoRx and Charley's Fund/Nash Avery Foundation Collaborate to Develop Novel Agents for Duchenne Muscular Dystrophy $3 Million to Fund Drug Discovery and Product Development Program…
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October 15, 2007

AVI BioPharma Receives Major Research and Development Grant From Charley’s Fund for Duchenne Muscular Dystrophy

AVI BioPharma Receives Major Research and Development Grant From Charley’s Fund for Duchenne Muscular Dystrophy $2.45 Million Will Fund Research and Product Development Program PORTLAND,…
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